Where i have been

[Bobby Sands]

^^yea Transverse Myelitis sorry.

 

[k69atie]

Thanks seb and everybody else for your kind words - have now joined the Myelitis society - and have registered as a sufferer they have a forum there so can speak to people who have the same thing.

Am really pissed off after reading that if the dr's had found out what was wrong within 72 hours (instead of 2 months later, 2 hospital stays and a lumbar puncture later) they could have put me on a steroid drip for 5 days and would of stopped it from getting worse (although it sometimes doesn't work)

I have to see a joint specialist as the neurologist didn't think that was connected to the myelitis so i have to wait to see him.


So yeah pretty shit time really, in chronic pain, am depressed (caused by the myelitis) and my aunt is dying. Oh and i missed out on a family wedding yesterday too.

Luckily the toilet problems have stopped and i don't wet myself. Before i had no feeling down there at all - and couldn't feel needing the loo or going luckily i had no accidents as i was aware so was constantly going to the loo. Now that has stopped but is coming back in mixed signals.

So i am hoping that their myelitis forum will be a great deal of help to me as they also send me a 40 page info pack.

Anyway sorry to go on xxxxxx

 

[k69atie]

Oh in short - i don't know if it will go - it can sometimes be the first sign of MS but luckily the MRI scan they did on my brain and the lumbar puncture showed that i am all clear of that.

Taken from the TM website with regards to recovery:

Recovery from TM generally begins within 8 weeks from onset. Recovery is often rapid during months 3-6 and may continue for up to 2 years after onset. One third of those diagnosed with TM make a good recovery, one third have only a fair recovery (ie moderate degree of per-manent disability), and one third show no recovery.

 

[hizzle?]

Don't worry, you have 66% better chance of getting better.

66% of the time works every time.

 

[_carmi]

You can do it Katie!!!

Did you get your appointment date with the joint specialist? Hope it's not too far.

 

[Farzin]

Staying positive is a big part of the healing process. You have to try to keep yourself positive to make sure you'll get soon better.

Keep your head up!

 

[Shadows]

Staying positive is a big part of the healing process. You have to try to keep yourself positive to make sure you'll get soon better.

Keep your head up!

Reading boring post's doesn't help.

Katie,

Staying positive is a big part of the healing process!

 

[k69atie]

You can do it Katie!!!

Did you get your appointment date with the joint specialist? Hope it's not too far.

Not not yet - the NHS is shocking - could be months and to go private would cost thousands.

I am trying to stay positive but that is quite hard when depression is one of the things you suffer from when you have what i do.

But hey i am lucky - i am going to live. Not like my auntie - so i don't know how lucky i am really. xxx

 

[Az-Tech Loc]

^^^
You are lucky K69atie. Everyday above ground is a blessing. You seem like a strong person. You can do it. We believe in you. Take care K69atie. I will keep on praying for you.

 

[Flipmo]

You can do it Katie, put your ass into it. I can do it, put my ass into... ass into it.

 

[Bobby Sands]

i love your attitude katie. i hope you make a full recovery as soon as possible.

 

[_carmi]

Baby don't cry, I hope you got your head up.
Even when the road is hard, never give up.

and

Through every dark night, there's a bright day after that.
So no matter how hard it get, stick your chest out.
Keep your head up, and handle it.

 

[THEV1LL4N]

^^ same as what bobby said above ^^

you seem to be coping really well. all the best for future treatment. and to think that most of us have "problems" everyday....

best of luck!!

 

[k69atie]

Baby don't cry, I hope you got your head up.
Even when the road is hard, never give up.

and

Through every dark night, there's a bright day after that.
So no matter how hard it get, stick your chest out.
Keep your head up, and handle it.

Even that made me cry!!! Lol thanks for you kind words carmi (((hugs)))

Thanks for eveyones kind words - sorry to go on xxxxx

 

[Az-Tech Loc]

Dont be sorry Mama, dont be sorry. I wish I had your strength and resiliance. You are brave K69atie, I admire that. fight it, show it how strong you are mama.

 

[k69atie]

Thank you Az Tech Loc xxxx

 

[ArtsyGirl]

I hope you recover 100% Katie this TM shit sounds horrible, but do what you have to, and do whatever you can to beat the depression. I know its no comparison but when I was going thru my Coeliac / Chronic Fatigue it caused depression too, you will recover and the depression will go.. Just a bump in the road

 

[k69atie]

I have some new tablets and will be getting physio soon too. My blood tests show that my joints are inflammed. So waiting on seeing the joint specialist.

 

[Bobby Sands]

^^are the new tablets helping relieve the pain?

 

[k69atie]

Sort of only had one full day on them - got physio next wednesday x